Hello Everyone
I am now helping with another project. The Standcombe Family in Merrimack NH needs help.
The Rotary Club, Reeds Ferry Elementary School and I are nominating them for an Extreme Home Makeover. If it doesn't get picked for the fall visit to NH. Then we as a community will build them a new house. Why do they need it? Well they have two kids with Battens Disease. Yeah look it up . I didn't know what it was either, but now I do and it is BAD. The house is not safe or handicapped accessible and we want to help them. I will keep you updated as to the progress. Right now we have the stuff ready to send to Extreme Home Makeover and we have an architect drawing plans for us just incase they don't come back to NH. So one way or the other they will get a new house or a remodeled house. So they can give the kids the best while they still are alive.
It is no fun being sick and I can't imagine not being able to move or see.
Meghan
HI This is Sue
Imagine seeing your children go from a "normal" active child to a wheelchair bond, not being able move without help, speak to you , or see you. I can't. After meeting the mom and seeing her love for her kids and how strong she is for them. I knew we needed to be involved. I will keep you updated.
The children at the top are William age 5 and Gracie age 3. As you see William is already wheelchair bond and Gracie unfortunately will be that way in the coming years.
Sue