NYC Tap City 2008

Left: Karen Calloway Williams- Meghans teacher for the week. Below Chloe Arnold

Left: Meghan on stage

Below: Meghan's friend Tyler from Washington

State

Left: Meghan's friend Dario. (Broadway performer to be:)

Below: Chloe Arnald. You can google her.

Left: Karen Calloway Williams-Meghan's teacher for the week.

Below: Dr. Harold Cromer. Famous Hoofer.

One of Meghan's Favorites. He askes for her every year.

Left: Josh Hillberman

Below: Michelle Dorrance Check out Dance Magazine (June )

During class.

Hi Everyone

Here are some pictures of Tap City. Meghan danced with some of the best tap dancers from around the world.

You may see Dario in Billy Elliot on Broadway and possibly Gypsy. He is a nice young man with tons of talent. Meghan had a blast. As soon as I download movies I will try and post them. Sue

NASCAR 2008

Nascar with Uncle Steve, Tyler, Lucas, and mom

taking the pictures.

We got to sign the start line.

We got to sit in Tony Stewarts call box.

We got to see the 88 car.

We got to wear the yellow headsets that let us hear the drivers talking.

We got to go sit inside a suite and not out in the hot yucky weather with the noise.

THANK YOU Julie.

Love Meghan

LAST DAY OF SCHOOL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Now I will be in the 6th Grade.

Recital 08

More to come when I have time.

Ballet, Tap, Pointe Classes 08

Here is some pics. of Meghan dancing. Enjoy!

Medical Update 6/16/08

Yahoooooooo!!!!!!!!!!!!!

Lung Functions the best they have ever been.

So no hospital.

The Dennis Walters Show

Hi

This is my new friend Dennis Walters. He is cool. He is paralized from the waist down. But he can still play golf. He has a special golf cart with a chair that turns and has a big belt that holds him there and he can golf sitting down. He does a show that teaches people to NEVER NEVER GIVE UP. Just what I always say. Check out http://www.denniswalters.com/

I also met another new friend. Joanne O'Keefe. She brought us there to meet Dennis. We stayed in a hotel and my room opened right up to the indoor pool. It was cool. I went swimming at 7 am. She is a nice lady. We had fun. She knows alot of people. Check out http://www.tamtech.com/ and http://www.madebysurvivors.com/ she works with both of those.

The Stancombe Family

Hello Everyone

I am now helping with another project. The Standcombe Family in Merrimack NH needs help.
The Rotary Club, Reeds Ferry Elementary School and I are nominating them for an Extreme Home Makeover. If it doesn't get picked for the fall visit to NH. Then we as a community will build them a new house. Why do they need it? Well they have two kids with Battens Disease. Yeah look it up . I didn't know what it was either, but now I do and it is BAD. The house is not safe or handicapped accessible and we want to help them. I will keep you updated as to the progress. Right now we have the stuff ready to send to Extreme Home Makeover and we have an architect drawing plans for us just incase they don't come back to NH. So one way or the other they will get a new house or a remodeled house. So they can give the kids the best while they still are alive.
It is no fun being sick and I can't imagine not being able to move or see.
Meghan

HI This is Sue

Imagine seeing your children go from a "normal" active child to a wheelchair bond, not being able move without help, speak to you , or see you. I can't. After meeting the mom and seeing her love for her kids and how strong she is for them. I knew we needed to be involved. I will keep you updated.

The children at the top are William age 5 and Gracie age 3. As you see William is already wheelchair bond and Gracie unfortunately will be that way in the coming years.

Sue

Meghan's New Bike from some VERY special friends.

Medical Update 5/25/08

Meghan is fighting the Flu. It hit her hard and fast.
She is pretty tired. She is on extra anitbiotics, respiratory treatments, physical therapies, and rest.

Imagine Meghan lying still and not talking for a whole 24 hrs. That is when I knew she was really sick.

She is on the up side of it now but still doing all the treatments. Hoping to stay out of CHaD.

Nursey Nicole

Having Breakfast with Nursey Nicole on her last day at CHaD.

Medical Update 5/19/08

We had GI and CF clinic today. GI side went awesome. She has gained weight and gotten taller. CF side wasn't so good. Lung functions are down 7%. Usually they get put in the hospital if it is 5% down but we are trying 10 days of Cipro, extra nebs, and extra physical therapy. So lets hope it impoves because I would hate her to miss that last few weeks of school.
Will keep you all updated. Sue

My Buddy Paulie