Recital 08

More to come when I have time.

Ballet, Tap, Pointe Classes 08

Here is some pics. of Meghan dancing. Enjoy!

Medical Update 6/16/08

Yahoooooooo!!!!!!!!!!!!!

Lung Functions the best they have ever been.

So no hospital.

The Dennis Walters Show

Hi

This is my new friend Dennis Walters. He is cool. He is paralized from the waist down. But he can still play golf. He has a special golf cart with a chair that turns and has a big belt that holds him there and he can golf sitting down. He does a show that teaches people to NEVER NEVER GIVE UP. Just what I always say. Check out http://www.denniswalters.com/

I also met another new friend. Joanne O'Keefe. She brought us there to meet Dennis. We stayed in a hotel and my room opened right up to the indoor pool. It was cool. I went swimming at 7 am. She is a nice lady. We had fun. She knows alot of people. Check out http://www.tamtech.com/ and http://www.madebysurvivors.com/ she works with both of those.

The Stancombe Family

Hello Everyone

I am now helping with another project. The Standcombe Family in Merrimack NH needs help.
The Rotary Club, Reeds Ferry Elementary School and I are nominating them for an Extreme Home Makeover. If it doesn't get picked for the fall visit to NH. Then we as a community will build them a new house. Why do they need it? Well they have two kids with Battens Disease. Yeah look it up . I didn't know what it was either, but now I do and it is BAD. The house is not safe or handicapped accessible and we want to help them. I will keep you updated as to the progress. Right now we have the stuff ready to send to Extreme Home Makeover and we have an architect drawing plans for us just incase they don't come back to NH. So one way or the other they will get a new house or a remodeled house. So they can give the kids the best while they still are alive.
It is no fun being sick and I can't imagine not being able to move or see.
Meghan

HI This is Sue

Imagine seeing your children go from a "normal" active child to a wheelchair bond, not being able move without help, speak to you , or see you. I can't. After meeting the mom and seeing her love for her kids and how strong she is for them. I knew we needed to be involved. I will keep you updated.

The children at the top are William age 5 and Gracie age 3. As you see William is already wheelchair bond and Gracie unfortunately will be that way in the coming years.

Sue

Meghan's New Bike from some VERY special friends.

Medical Update 5/25/08

Meghan is fighting the Flu. It hit her hard and fast.
She is pretty tired. She is on extra anitbiotics, respiratory treatments, physical therapies, and rest.

Imagine Meghan lying still and not talking for a whole 24 hrs. That is when I knew she was really sick.

She is on the up side of it now but still doing all the treatments. Hoping to stay out of CHaD.

Nursey Nicole

Having Breakfast with Nursey Nicole on her last day at CHaD.

Medical Update 5/19/08

We had GI and CF clinic today. GI side went awesome. She has gained weight and gotten taller. CF side wasn't so good. Lung functions are down 7%. Usually they get put in the hospital if it is 5% down but we are trying 10 days of Cipro, extra nebs, and extra physical therapy. So lets hope it impoves because I would hate her to miss that last few weeks of school.
Will keep you all updated. Sue

My Buddy Paulie

FLORIDA APRIL 08

AWESOME FUN!!!!!!!

Show for Kristen's Gift/CHaD Update

Hi All

So I was totally exhausted today and just slept. Meghan was even very quiet today. Imagine that.

Well as most of you know last night was our 3rd Annual "Come Together" show. This year we chose to raise the funds for the pediatric cancer dept. at Children's Hospital at Dartmouth so all funds raised went to Kristen's Gift. To learn more about it just google it.

The past two years we raised $1900, $2365, and this year our goal was $3000.

WE DID IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!! We raised $4610.00 and we still have a few checks coming in.
So we are so excited.

It was a fabulous show. All the girls and audience had alot of fun. Meghan challenged me to wear a cocktail dress, steletto heels, and fishnet stockings. So I did. Meghan did the intro and brought me out on stage with Miss NH Rachel Barker and she taught me the Miss NH Strut.
Yeah ok you can stop laughing now. It wasn't as bad as I thought it would be. Although I had the shoes off before I left the stage. I did keep the dress on as Meghan wished. I will have pictures up here as soon as I get them.

The story of the night is not that. It is that the show was in HONOR and MEMORY of a very special girl named Paige. She lost her battle to cancer at the age of two and 1/2. She and Meghan were good friends. Paige always had a smile on her face. She always shared. She just lived life to the fullest each day with a smile. She taught me that even though life is not easy, you can still have a smile and do your best. She taught me that a smile can really change a person's life.

Thank you Paige.

So in Paige's name we will donate all the money raised. It is still coming in so I will give you the final totally next week.

CHaD Show/Kristen's Gift

The CHaD show was tonight. It was an awesome awesome time.

Our grand total raised was.....


$4610.00 and still adding

THANK YOU THANK YOU THANK YOU

More info to come later.. My feet hurt

Live by this.

I hope you all take the time to read the following. It
was written by a cancer child in her last few hours to live.


YOU BETTER SLOW DOWN.

Have you ever watched kids on a merry go round?
Or listened to the rain slapping on the ground?
Ever followed a butterfly’s erratic flight?
Or gazed at the sun into the fading night?

YOU BETTER SLOW DOWN.
DON'T DANCE SO FAST
TIME IS SHORT
THE MUSIC WON’T LAST

Do you run through each day on the fly?
When you ask, “How are You?” Do you hear the reply?
When the day is done, do you lie in your bed with the next hundred chores running thru you head?

YOU BETTER SLOW DOWN.
DON’T DANCE SO FAST
TIME IS SHORT
THE MUSIC WON’T LAST

Ever told your child we’ll do it tomorrow, and in haste, not see his sorrow?
Ever lost touch, let a good friendship go because you never had time to call and say Hi?

YOU BETTER SLOW DOWN
DON’T DANCE SO FAST
TIME IS SHORT
THE MUSIC WON’T LAST.

When you run so fast to get somewhere you miss half the fun of getting there.
When you worry and hurry through your day, it is like an unopened gift….thrown away.
Life is not a race So take it slower.

HEAR THE MUSIC
BEFORE THE SONG IS OVER.

Come Together Show

April 25th

Merrimack High School

Merrimack, NH

6pm

This show will benefit Kristen's Gift which supports the Children's Oncology Dept. at Children's Hospital at Dartmouth.

We are doing this show in Honor of a Paige. Paige lost her battle to cancer at the age of 2 and 1/2. She was always smiling and dancing. She lived life to the fullest.

All proceeds will be donated in her name.

Please help us. $1865.00 raised so far. We want to raise $3000 or more. Please help us get there.

You may send a donation by making a check out to Kristen's Gift and mailing it to

Success Dance and Performing Arts Center

416J DW Hwy

Merrimack, NH 03054

Attn Sue Richardson

Of course if you are near you may come to the show. We will have food, raffles, silent auction, and lots of fun. Tickets $10 adult $7 students/seniors

I am sorry I have had to stop allowing comments to be made to this site. We have had some
unwanted situations. It is too bad that some people in the world have to ruin good things for others.

Sue

CF clinic visit 4/14/08

HI

People have asked us to post Meghan's medical updates. So I will do it every 3 months, as that is when we do our clinic visits with her medical team.

Today was our April visit. All reports are good so far. Good weight gain 25.7kg to 27kg, good lung functions FEV1 160, good diabeties numbers btw 70-135 with occasional high spikes. We have some lab stuff coming back next week that tests her Kidney functions. Some of the meds she is on can affect the kidneys. Let's pray it doesn't. So all in all a good visit.

Daddy met us up there for a meeting afterwards to map out her current and future plans. Ya know those hormones are coming. Yippeeeeeee I can hardly wait.

Well that is all for now.

Sue

Hi Everyone

It is only 10 days until the CHaD Show that my dance studio is putting on to raise money for Kristen's Gift. They help the sick kids in NH that have cancer.

I am so excited because we are doing the show for my friend Paige that died from cancer. Her family is coming. I hope I can make them smile. I really miss Paige.

Meghan

Battle of the Badges for CHaD

$71,000 Raised for Children's Hospital at Dartmouth (CHaD)

It was the NH police VS NH fire.

The Police won 9-3 but the firemen say bring it on for next year.

Thank you so much to all the Police and Fire Depts. from NH

for making a HUGE difference in the lives of sick children.

MARY POPPINS NYC

This weekend we went to NYC to see Mary Poppins on Broadway. Meghan brought her friend

Rachel with us. They are sitting in the carraige that was used in the movie Enchanted. We did take a ride in it around Central Park. Thank You Make A Wish for the tickets donated by a very

nice person.

3rd Annual "Come Together" Show to benefit CHaD

Children's Hospital at Dartmouth

Friday April 25th

6pm

Merrimack High School

Merrimack, NH

Tickets

$10 Adults

$7 12 & under/seniors 65+

This years proceeds will go to Kristen's Gift in memory of Paige.

A friend of Meghan's that lost her battle to cancer at a very young age.

Kristen's Gift is part of CHaD and all funds go directly to pediatric oncology.

There will be a silent auction with Red Sox and Celtics items, food, and fun.

Miss Outstanding Teen NH will be performing and speaking.

So lots of fun. Come check it out and help a great cause.

Extreme Home Makeover in MA

Helloooooooooooooo

So I got out of the hospital on Thursday night and Friday morning I went to Maynard Ma to see my buddies from Extreme Home Makeover. I was soooo excited to see Paulie. I miss him so much. I also so my buddies Tonya, Michael, and TY. I got to talk to Ty and he videod it. AND I got to meet Paige, the designer that always wears PINK. I got to go in the house as they were finishing it. It is so cool. I can't tell you what is inside it but you should really watch this story.

I got to sit in the star trailer with Michael, Paige, and Paulie to watch the family go thru the house and see their expressions. That was cool.

I think besides seeing Paulie the other best thing is they made me "TRANSPO CAPTIAN".
They gave me a walkie talkie and I was in total control of the transportation team. I got to send drivers to do all kinds of things. I got to help the designers get things they needed and send it to them. I think I want to work for them and travel with them.

Bye for now. Meghan